ITN TrialShare Privacy Policy

Study Participant Privacy

ITN places the highest value on the safety and privacy of our research participants. During the course of a study, participants are each identified by a unique code rather than by any personal identifiers such as name, initials or Social Security number. TrialShare does NOT contain any HIPAA defined Personally Identifiable Information (PII). Furthermore, all data available to the public has been carefully de-identified following the Safe Harbor method of de-identification in accordance with the HIPAA Privacy Rule. This includes masking the original participant code, shifting all dates, removing all Protected Health Information (PHI), and removing any remaining fields which may contain information allowing identification of an individual.

User Privacy

When registering for an account, users must supply a valid email address. Users have the option of supplying additional contact information such as name and affiliated institution. The ITN treats this personal information as private and confidential, and will not disclose it to third parties without express permission of the user or as required by law. The information is stored on ITN’s secure TrialShare server and ITN takes reasonable technical and organizational precautions to keep this data secure and prevent any loss or misuse.

When visiting itntrialshare.org we may store information as cookies on your computer as a means of setting your preferences for future visits. ITN tracks usage of TrialShare to help us with future development of the system.

While TrialShare may provide links to third-party websites, the ITN exercises no authority over linked sites, each of which maintains its own independent privacy and data collection policies and procedures. The ITN assumes no responsibility or liability for information provided by these sites or for their independent policies. These links are provided only for convenience and do not represent an endorsement of any kind by the Immune Tolerance Network nor its sponsors and, as such, users of itntrialshare.org access them at their own risk.

If you have questions or concerns about this policy, please contact trialsharesupport@immunetolerance.org.

Changes in the Privacy Policy

ITN TrialShare reserves to make changes to the Privacy Policy at any time and for any reason without prior notice. Any changes will be posted on this page so that users are always aware of our policies.